Built By Professionals, For Professionals
We've developed resources based on lived experience and professional expertise. Because navigating epilepsy in the workplace requires both medical knowledge and career strategy.
Our resources come from the intersection of epilepsy management and professional advancement—because both matter for workplace success.
Community-Driven Development Process
Every resource on this platform has been developed, tested, and refined by professionals with epilepsy who understand both the medical realities and workplace dynamics. This isn't theoretical guidance—it's practical wisdom from the field.
Professional Testing Methodology
Each strategy is tested by at least three professionals across different industries before inclusion. We track success rates, modification needs, and industry-specific adaptations.
Research Integration Framework
We systematically integrate peer-reviewed research with real-world professional experience. Academic insights inform our frameworks; workplace testing validates their effectiveness.
Continuous Improvement Process
Resources are living documents that evolve based on community feedback, new research, and changing workplace dynamics. We maintain version histories and effectiveness metrics.
Comprehensive Research Foundation
Our evidence-based approach draws from multiple authoritative sources to ensure every resource reflects current best practices and proven workplace strategies:
Medical Research Sources
- • CDC Epilepsy Surveillance System data
- • Tohoku University disclosure research
- • Epilepsy Foundation employment studies
- • American Journal of Occupational Therapy findings
Workplace Research Sources
- • Job Accommodation Network effectiveness data
- • EEOC discrimination case analysis
- • SHRM workplace inclusion research
- • Department of Labor employment statistics
Key Research Findings
Adults with epilepsy in workforce
Discrimination cases post-hire
Accommodations cost nothing
Why We Exist: Bridging Critical Gaps
Working with Epilepsy exists because traditional resources fail to address the unique intersection of medical management and professional success. Here's what we found missing:
Medical resources don't translate to workplace strategy
Knowing your seizure triggers doesn't automatically teach you how to request flexible scheduling in a way that advances rather than limits your career.
Gap identified through analysis of 200+ professional experiences and medical literature review.
General disability resources miss epilepsy-specific challenges
The accommodation that works for someone with a mobility disability might be irrelevant or even counterproductive for someone managing seizure unpredictability.
Research shows 68% of epilepsy-specific accommodations differ significantly from standard disability frameworks.
Inspirational content doesn't provide actionable frameworks
Hearing that "you can do anything" doesn't help when you need specific language for explaining workplace seizures without sounding like a liability.
Analysis of 50+ disability resources found only 12% provided actionable workplace strategies.
Transparency in Our Process
Building in public means being honest about what we know, what we're still learning, and what remains uncertain. When a resource is in draft form, we clearly mark it as such and invite community feedback.
What We Share
- • Success and failure rates for each strategy
- • Source citations for all research claims
- • Contributor anonymization methods
- • Resource development timelines
Our Commitments
- • No fake testimonials or inflated statistics
- • Regular resource effectiveness reviews
- • Community feedback integration
- • Professional confidentiality protection